Ella was a normal teenager that loved school, basketball, her social life, and her family. Ella started to complain of headaches in March of 2021.We took her to the doctors who then referred us to a neurologist she passed all of the neurological tests, her only complaint were headaches; they thought possibly dehydration. We scheduled an MRI on April 22, 2021, and that’s when our life changed forever! Our poor daughter had a brain tumor that had also spread to the back of her brain. Ella was diagnosed with medulloblastoma subtype Sonic Hedgehog and unfortunately the molecular make up of this tumor was LCA,MYCN amplification and TP53 somatic which makes this particular type of cancer hard to treat. Ella had surgery 5 days later followed by 30 rounds of radiation and 4 months of chemo. Chemo wreaked havoc on her body, she completed chemo Nov. 2021 and continued to get stronger went to physical therapy to help her work through drop foot caused by chemo. Ella was looking forward to going back to school and was hoping to play basketball with her high school team. On June 16, 2022 Ella relapsed had surgery again, followed by radiation she will have her port replaced so she can begin chemo in September 2022. Ella has never given up hope she loves spending time with her family and still has very high hopes of going back to school to begin her sophomore year. We can only hope that one day there will be a cure for this terrible disease to help our children survive.
Collaboration to Cure Medulloblastoma
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