• Collaboration to find a cure for dulloblastoma.

    …to create a shared understanding, voice and priorities to cure MEdulloblastoma. Across Patient Families, the Brain Tumor Nonprofit Community, Clinicians & Researchers, Treating Institutions, and Industry.

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About Us

Welcome to curedullo

Our Mission

Is to find a cure for Medulloblastoma, the most prevalent brain cancer in children.

Our Vision

Through deep partnership, build and evolve a shared understanding of the best approaches to diagnose, treat, and recover from Medulloblastoma and the various complications that arise from the disease and its treatments.

Our Community

Parents, patients, caregivers, scientists, researchers, like-minded pediatric brain tumor non-profits, patient advocates, oncologists and related specialist researchers and clinicians, legislators.

The cancer and brain tumor communities are diverse and broadly based. We aim to convene and focus these like-minded groups’ efforts when they relate to Medulloblastoma. We believe in the breadth of the community, and the power of bringing focus to a disease pathway, its treatments, and research priorities.

The dulloblastoma Journey

Parents and families, you are not alone. curedullo understands that knowledge is power. Our aim is to help you understand treatment options, side effects to manage, and questions to ask along your Medullo journey.

MORE ABOUT THE MEDULLO JOURNEY

The dulloblastoma Journey

Parents and families, you are not alone. curedullo understands that knowledge is power. Our aim is to help you understand treatment options, side effects to manage, and questions to ask along the Medullo journey.

MORE ABOUT THE MEDULLO JOURNEY

Building Community

“The joining of forces between organizations represents our synergistic commitment to advancing research in medulloblastoma and ensuring a cadre of investigators focused on this important area.”

-Gerry McDougall

Funding Research

“Treatment for childhood medulloblastoma, with a few exceptions, has changed very little of the past two decades. This needs to change. We need to find new, less toxic cures for all children with medulloblastoma.”

– Dr. Daniel Bowers

Legislative
Advocacy

Together with Mrs. Linda McCaul and Representative Michael, we launched the Congressional Childhood Cancer Caucus (CCCC) and created an unstoppable collaborative GLOBAL childhood cancer Movement.

-Annette Leslie
What We Do

A single-focused dulloblastoma organization

Our recent analysis by PricewaterhouseCoopers revealed that while there are dozens of organizations focused on pediatric brain tumors, there are NO organizations acting as a convener across the Medulloblastoma community. In this era of precision medicine, specificity matters. We believe in deep partnering across the broader pediatric brain tumor community to prioritize and fund research, support our kids and those who will come after us, and to support advocacy for Medullo-specific needs across the legislative community.

Understanding

Questions and Research

Understanding & treating Medulloblastoma is the focus of a range of ongoing clinical research. Patients may qualify for trials depending on their diagnosis and treatment location. Researchers built a backlog of questions to build studies and seek funding.

Our remarkable

Partners

Childhood Brain Tumor Foundation

We work hard to raise awareness for childhood brain tumors. Many of CBTF families participate in helping our cause and have helped to fund research

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Dr. Robert Wechsler-Reya

Dr Wechsler-Reya Lab studies the signals that control cell growth and differentiation in the nervous system and how these signals are dysregulated in brain tumors. We focus on medulloblastoma, the most common malignant brain tumor in children, and use models to understand the disease and to develop novel approaches to therapy.

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Our Children

Stories

Carson had a bold, charming confidence, an indomitable spirit, and a disarming smile that would warm a room. Most of the time during his 3+ year Carson vs. cancer battle, he had a smooth bald head that undeniably shouted cancer. He walked with courage, grace and dignity every step of his valiant battle. On January 12, 2010 he took his last breath and stepped into Paradise.

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The week before Thanksgiving 2016 was unknowingly the start of our fight. Cooper came down with what we thought was a virus and then we heard the dreaded words your child has a brain tumor.

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Curemedullo Is A Division of The Carson Leslie Foundation ©2021
The Carson Leslie Foundation | Helping Kids Fight Cancer