• Collaboration to find a cure for dulloblastoma.

    …to create a shared understanding, voice and priorities to cure MEdulloblastoma. Across Patient Families, the Brain Tumor Nonprofit Community, Clinicians & Researchers, Treating Institutions, and Industry.

    Join Our Efforts Today

About Us

curedullo

powered by The Carson Leslie Foundation

Our Mission

Is to find a cure for Medulloblastoma, the most prevalent brain cancer in children.

Our Vision

Through deep partnership, build and evolve a shared understanding of the best approaches to diagnose, treat, and recover from Medulloblastoma and the various complications that arise from the disease and its treatments.

Our Community

Parents, patients, caregivers, scientists, researchers, like-minded pediatric brain tumor non-profits, patient advocates, oncologists and related specialist researchers and clinicians, legislators.

The cancer and brain tumor communities are diverse and broadly based. We aim to convene and focus these like-minded groups’ efforts when they relate to Medulloblastoma. We believe in the breadth of the community, and the power of bringing focus to a disease pathway, its treatments, and research priorities.

READ OUR STORY

Forever Ella Strong

Ella Bresee took her last breath in the wee hours of the morning, then stepped into Paradise.
She fought a short, fierce battle against #medulloblastoma and touched hundreds of thousands of lives with her radiant smile and generous spirit.
In May, Ella brightened the room in the United States Capitol when she shared her valiant cancer story with Members of Congress and the Office of Science and Technology.
Nobody ever wishes cancer ambassadorship on a child or teen, but Ella took on that role with grace and class. Ella was slated to speak this Wednesday at our Foundation’s Golden Toast in Washington D.C. Almost 200 guests comprised of childhood cancer thrivers, siblings, parents, and bipartisan Members of Congress including Michael McCaul and Jackie Speier will be in attendance.
Ella inspired people of all ages and all walks of life—from US Congressional to the storied football program Clemson University —but most importantly, she inspired the kids who are battling cancer, to take one day at a time and never give up.

#EllaStrong

Ella’s Cure ME Fund
 

The dulloblastoma Journey

Parents and families, you are not alone. curedullo understands that knowledge is power. Our aim is to help you understand treatment options, side effects to manage, and questions to ask along your Medullo journey.

MORE ABOUT THE MEDULLO JOURNEY

The dulloblastoma Journey

Parents and families, you are not alone. curedullo understands that knowledge is power. Our aim is to help you understand treatment options, side effects to manage, and questions to ask along the Medullo journey.

MORE ABOUT THE MEDULLO JOURNEY

Building Community

“The joining of forces between organizations represents our synergistic commitment to advancing research in medulloblastoma and ensuring a cadre of investigators focused on this important area.”

-Gerry McDougall

Funding Research

“Treatment for childhood medulloblastoma, with a few exceptions, has changed very little of the past two decades. This needs to change. We need to find new, less toxic cures for all children with medulloblastoma.”

– Dr. Daniel Bowers

Legislative
Advocacy

Together with Mrs. Linda McCaul and Representative Michael, we launched the Congressional Childhood Cancer Caucus (CCCC) and created an unstoppable collaborative GLOBAL childhood cancer Movement.

-Annette Leslie
What We Do

A single-focused dulloblastoma organization

Our recent analysis by PricewaterhouseCoopers revealed that while there are dozens of organizations focused on pediatric brain tumors, there are NO organizations acting as a convener across the Medulloblastoma community. In this era of precision medicine, specificity matters. We believe in deep partnering across the broader pediatric brain tumor community to prioritize and fund research, support our kids and those who will come after us, and to support advocacy for Medullo-specific needs across the legislative community.

Understanding

Questions and Research

Understanding & treating Medulloblastoma is the focus of a range of ongoing clinical research. Patients may qualify for trials depending on their diagnosis and treatment location. Researchers built a backlog of questions to build studies and seek funding.

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In Collaboration, cureMEdullo has helped to advance promising research

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Our Children

Stories

Blake was diagnosed after having symptoms of just vomiting for about 3 months. January 30th he woke up and couldn't walk. He was taken to Blank Childrens hospital in Des Moines Iowa where a cat scan revealed a mass in the back of his brain. He was then transported to University of Iowa Stead Family…

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I was driving Paxton’s sister home from her art therapy appointment when she said, “You know Mom, Paxton is a legend.” “What do you mean he is a legend?” I asked her. “Well, he was a hero.” He most certainly was my hero. Paxton had courage and strength that transcended ordinary people. He had a…

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Levi is a 9 year old baseball loving kid with the most infectious laugh, and the biggest heart. Is April of 2022 Levi was diagnosed with Medulloblastoma.

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Our remarkable

Partners

The Ruth Cheatham Foundation

From Surviving to Thriving.  providing scholarships to teens impacted by cancer, so they can move past their diagnosis and on with their life.

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Swifty Foundation

The Swifty Foundation’s mission is to raise funds and awareness for pediatric brain cancer research by supporting:

  • Tissue Donation
  • Research Collaboration
  • Medulloblastoma Research

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Curemedullo Is A Division of The Carson Leslie Foundation ©2021 The Carson Leslie Foundation | Helping Kids Fight Cancer